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Forum de discussion en Anglais

L’association américaine a mis en place un groupe de discussion où les familles peuvent échanger questions et informations. Pour vous inscrire, contacter Teresa Kennedy à l’adresse suivante : teresa@fanconi.org

Livre : « Two in a million »

Récit autobiographique écrit par Ben Murname, Fanconi (en anglais) Pour en savoir plus : http://benmurnane.com/

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