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La maladie

La maladie de Fanconi est une maladie génétique rare qui se déclare le plus souvent dès la petite enfance. Les manifestations de la maladie peuvent être très variables d’une personne à l’autre ainsi que son évolution. Sa gestion au quotidien s’avère parfois compliquée et difficile. C’est pourquoi des familles ont crée cette association en 1990 afin de s’entraider, partager leurs expériences, se soutenir. Nous espérons qu’elle saura apporter l’aide, le réconfort et l’information dont chacun aura besoin.

Vous aussi, ne restez pas seul, rejoignez-nous !

Depuis que l’association existe, 20 ans déjà !!!, les traitements se sont améliorés de façon très sensible et nul doute que d’autres progrès verront le jour dans les années à venir et amélioreront ainsi pronosctics et traitements !

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