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Comment gérer le suivi médical

Vous ou votre enfant est porteur de la Maladie de Fanconi, ou bien vous venez d’apprendre la nouvelle. Cette annonce a ou va sans doute modifier votre vie et vous vous demandez comment vous allez pouvoir faire face.

Cette rubrique a pour objet de vous donner différents conseils afin de vous aider à gérer au mieux cette maladie et vous verrez, vous y arriverez très bien !

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